Tag Archives: Fibromyalgia


Commentary on this post on tumblr.

My rapid decline in health after I was forced to move continues to worry me. I was already, most people would have said, somewhere in the Jar Jar Binks infinite loop region of a life lacking in quality or tolerability. But I have collapsed into areas I do not know how to label or define. My pain scale has moved into heights no one is buying.

“A seven is a profoundly good day, lately.”

“What’s equivalent to a seven?”

“When I had severely broken a bone and wasn’t given any medicine for it.”

“It can’t be that bad.”

What was once my idea of ten — 24 hours after the bone surgery to repair the break, which involved inserting six screws and cramming the bone back under muscle and tissue, when they had not given me any medicine for ten hours — is now residing around 8.5.

Right now, how do I feel? 9? 10? 11? Do numbers have any use, now? Do they make sense? If they’ve crossed into complete disbelief, what reason is there to try to accurately label my suffering?

try to imagine ‘the worst pain I can imagine’ so I can reset 10 to something I can point at with any lucidity. “Amputation of limb via dull hand saw without anaesthesia” is my current best guess.

I was speaking to someone recently, a chemical engineer, who was enraged about the complete lack of safety protections or measures for people who work in food service and handle large amounts of boiling water. I’d mentioned how often we all had gotten burned at work, and how very severe one person’s burns were (she would not remove her soaked clothing in the back room in private, and ended up allowing her skin to ‘cook’ for a lengthy period of time, which made it even worse than the water itself was). He was so angry about the commonality of serious and severe burns people get.

I thought about the day when I burned the entire back of my hand and between all of my fingers and silently put my hand under the tap for a couple of minutes until I was certain my skin was tepid, dabbed some aloe on it, and went back to work without anyone knowing what had happened. Later, I had to confess to it because I was having a difficult time unboxing individual cast iron teapots and rearranging the storage for them because my left hand was basically useless, and had to ask a coworker if I could trade them for what they were doing.

That burn? I suppose that’s a 3, by my current notions and using the descriptions in this image along with the other usual rating indicators. It was interfering with some tasks, but I could ignore the pain enough to do almost everything. Would that be a 3 to a normal, healthy person? Pouring boiling water over the back of their hand?

It seems my low end things, which typically are never worth mentioning, have been relatively static (judging solely by those physical responses, not what I would’ve said the number was back then, which probably would’ve been ratcheted up to 7), and I’m not sure if my sensitivity to pain has changed much — rather, I think my knowledge of pain has become extremely broad and filled with minute distinctions. I could probably work with numbers like 8.015, if I really wanted to.

3 is, however, functionally painless for me, now. My day to day chronic level used to be 4-5. At a 3, I was feeling pretty good. Then it went up to 5-6, then 6-7, then 7-8, and now 8-9.

I’d planned on doing the obvious pair of Fs this week and next: Freyr and Freya. Talking about how things have evolved and how they currently are, my life elsewhere, etc, and to talk about how she is starting to become a presence in my life after staying away almost entirely for the first year of our relationship.

I have no words for today. The widely varied agonies, including brand new TMJ pain that was so severe that I had serious trouble chewing anything and the joint is very swollen, the ongoing searing nerve pain, the three muscle spasms scattered around my body, the migraine, etc and so forth. I can write a list. Which is meaningless, really.

A blur of muddy red-black suffering with moments of shocking too-bright white, flinching, the glare searing through.

Plug a night light in
Leave the porch light on
Because the small dark corners have designs on me

Plug a night light in
Leave the porch light on
Because the small dark corners are establishing a colony

Plug a night light in
Leave the porch light on
Because the small dark corners breathe like heavy animals

Fibro Flare

I’ll not do a F is for Fibro Flare PBP post, but I’m having a rather bad one. The very cold weather and 20″ of snow we had around the weekend kept up with another inch or two of snow, and we had icicles longer than my arm hanging from the roof by our kitchen window.

When I went out yesterday to get my ride to the train station, I slipped on a large patch of ice and fell on my back. Then I had to walk around NYC all day carrying a very heavy bag: I decided to buy wine from Trader Joe’s, because the TJ here does not have a wine store, and TJ sells very good wine at obscene prices; I picked up five bottles of red for about $20, and got a bottle of ice wine as an anniversary gift for V and Brand, which was itself $20.

Ice wine is made is extremely small quantities and it is mind-blowing. I am sure Freyr and Freya will both love it passionately and I think Eir also will. So would Sigyn, undoubtably. If you are very close to Sigyn or Freya, it might be worth looking into. It can be ordered online, and you can ask around at local wine shops.

I didn’t know that V strongly prefers white wine. I don’t know where I gathered the idea that, like the two of us, he preferred red, especially when the only wine I can ever remember him buying has been white (he typically purchased sake, because there was a convenient shop with an excellent selection when we lived in the city).

There’s a place that will do local delivery for only $5. And they have mead, which I have none of here!